Endometriosis: years of suffering before the right diagnosis

Endométriose : des années de souffrance avant le bon diagnostic

Today, we find Major Mouvement who will take control of our podcast La Famélia to share with us the testimony of Sabrina, suffering from endometriosis.

Endometriosis is a chronic inflammatory gynecological disease that is characterized by the presence of uterine-like tissue outside the uterine cavity. It is a disease that affects about 1 in 10 women. There is currently no cure for endometriosis. The diagnosis of this disease is often very long (7 years on average). There are as many types of endometriosis as there are menstruating women.

After having her first period at the age of 13, Sabrina has always had rather painful periods. When she was 15, Sabrina felt a very strong pain in her lower abdomen and thought it was an appendicitis attack. She went to the hospital but after a few tests, no diagnosis was made.

She then decided to take the pill, which would ease her pain since it would become more cyclical. But at the age of 21, she decided to stop taking the pill in order to get pregnant: the pains returned. She became pregnant and was bedridden for the duration of her pregnancy.

Sabrina's health was also affected by her illness: Ehlers-Danlos syndrome, characterized by an abnormality of the connective tissue. In other words, it affects the supporting tissues and causes hyperextensibility of the skin and joints.

Some time after the end of her pregnancy and after having taken the pill again, she decided to stop it again, not wanting to take hormones anymore. After stopping the pill, she suffered a pain crisis that led to her being hospitalized again.

After 9 months in bed, numerous other hospitalizations and appointments with various specialists, she was finally diagnosed with adenomyosis.

ELIA is more involved in the fight against endometriosis by donating 10% of the profits made on our menstrual panties to research and support organizations

On the same subject, we recommend you to read :

Endometriosis and colostomy: how to live with it?

How did endometriosis help me overcome my illness?

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