a little-known disease

Endometriosis, a chronic gynecological disease

At the launch of Elia and our organic period panties, we wanted to tell the story of Marion, the founder of the brand, to as many people as possible. To inform but also to allow thousands of people to understand their body, their pains, their periods and finally to potentially put words on their evils.

Qu’est-ce que l’endométriose ?

The fight against endometriosis is a cause that is dear to us. Over the past 3 years, things have evolved but no treatment has yet been found and clinical research on the disease is rare. Marion's visceral desire to fight against endometriosis in order to accelerate awareness of this disease and therefore its treatment is part of the genesis and DNA of the Elia brand.

This is why we support associations that fight against endometriosis and particularly the Foundation for Research and Fight against Endometriosis. Because there are no small contributions, there are only big commitments, we give back a part of our profits and all the people of the team are invested in this fight!

What is endometriosis?

Endometriosis is a chronic gynecological disease that affects an average of 1 in 10 women, or approximately 176 million people worldwide. This inflammatory condition is caused by the presence of endometrial-like tissue outside the uterus in regulated women. There is evenadenomyosis, a form of the disease where the endometrium infiltrates the myometrium and creates intense pain.

The location and depth of endometriosis lesions vary from one woman to another. The feeling, pain and impact on quality of life also vary from one person to another. The symptoms are therefore varied and difficult to understand for the medical staff but also for the patients who suffer from painful periods or chronic pain outside of their periods.

The impact of endometriosis is gynecological pain, infertility... Today, it is unfortunately common for a diagnosis to be made late: up to ten years can pass between the discovery of the first symptoms and the confirmation of the disease.

The chronicity of endometriosis and the menstrual cycles contribute to the growth of endometriosis lesions each month. It is a vicious circle that feeds itself more or less rapidly, depending on the woman. The growth of these endometriosis cells over time leads to the appearance of increasingly large lesions which then cling to and migrate towards the fallopian tubes, vagina, ovaries, colon, ureters and diaphragm. Sometimes, it can even happen that the endometriosis attaches itself to the sacral nerves or the sciatic nerves.

The story of Marion, founder of elia
A personal story

A long-lasting, silent inflammatory disease that gives signs of life for a while without ever really revealing itself...

Then one day, sometimes after months or years of pelvic pain, heavy periods, urinary discomfort, disturbed sexual relations, aborted pregnancy plans, you finally manage to find a cause, to put a name to what you have:endometriosis. It is a long road: very long delays in diagnosis and endless waiting for painful examinations.

This is the story of Marion, the founder of Elia, but it may also be yours, that of your daughter, your mother, or a loved one in your circle.

Elia gives back 10% of its profits
The fight against endometriosis, a cause we care about

Women suffering from endometriosis can go through several stages (hysteroscopy, laparoscopy, removal of the ovaries, tubes, artificial menopause, continuous pill...). However, no treatment has yet been found and clinical research is rare around the disease.

Marion's visceral desire to fight against endometriosis in order to accelerate the awareness of this disease and therefore its treatment is part of the genesis and DNA of the Elia brand.

This is why we support associations fighting against endometriosis. 10% of Elia's profits are donated to research projects and to support women facing this disease. In this way, each of your purchases contributes to making endometriosis known to the general public. Because there are no small contributions, there are only big commitments.

What are the main symptoms of endometriosis?

The symptoms and pain of endometriosis vary for each woman:

- Very painful periods, pain that prevents you from living your day normally. Endometriosis is a disease that is totally linked to hormonal activity and therefore to menstrual cycles. The pain is therefore accentuated when you have your period and your body produces inflammation! Approximately 70% of women who have endometriosis have disabling pain in their daily lives. Even outside of menstruation.

- Heavy periods, which exceed 80 ml of fluid loss - you can do the Higham test

- Pain during and after sex! It is not normal to have pain during sex. Endometriosis are cells that are lodged all over the place and in this case, they will come to the vagina or create cysts around the uterus, making certain sexual positions complicated. A large majority of women who suffer from pain during sexual intercourse have pain in the depths but also by reflex contraction of the perineum and the vagina during penetration.

- Pain during defecation or urination! When endometriosis adhesions settle in the digestive tract, some women have digestive problems and regularly experience diarrhea or constipation.

- Lower back pain or lumbar pain

- Chronic and lasting fatigue that does not go away after resting or taking magnesium or iron

- Difficulty having a natural pregnancy with endometriosis, usually after at least 12 months of trying for a baby. It is estimated that 30 to 50% of women with endometriosis suffer from infertility. This is due to ovulation disorders, endometriosis lesions on the reproductive system, a decrease in ovarian reserve, difficulties in having an embryonic implantation, obstruction of the fallopian tubes.

Is endometriosis benign?

Endometriosis lesions can behave like real tumors but rest assured, they are benign. The lesions infiltrate and deform the organs and disrupt their normal functioning, which makes the disease very complicated to manage for people with endometriosis.

What causes endometriosis?

Endometriosis is a very complex disease. It is a Trojan horse that fascinates many researchers and doctors. The various studies explain and agree that endometriosis appears 50% for genetic reasons and 50% for environmental reasons.

Certain mechanisms in the body also play a role in the development of the disease. Among these mechanisms we can distinguish

- Retrograde periods or retrograde menstruation. These are women who do not eliminate their periods correctly. The menstrual blood ends up implanting itself in the uterine cavity, the organs to create endometriosis lesions.

- Heredity - The French National Authority for Health (HAS) and the French National College of Gynecologists and Obstetricians (CNGOF) explain that the risk of developing endometriosis for first-degree relatives is 5 times higher than in the general population.

- The transformation of peritoneal cells into endometriosis. These are membranes that support the organs of the abdomen.

- The passage of uterine endometrial cells into the bloodstream at the time of menstruation causes the endometrium to migrate to other organs. This is also why endometriosis is sometimes associated with cancers or tumors. The mode of migration is essentially the same

- Endocrine disruptors are not innocent in the appearance of the disease. In fact, the WHO describes endocrine disruptors as substances or mixtures that alter the functions of the endocrine system. This system is itself a set of tissues and interactions that communicate with the rest of the body. Certain persistent organic pollutants such as polychlorinated biphenyls, organochlorine pesticides, dioxins, etc. have an impact on the endometrium.

How is endometriosis treated?

To date, there is no treatment for endometriosis, as this disease is incurable. It is very complex to diagnose and has various forms. However, various treatments are possible to reduce the proliferation of cells and limit the impact on daily life, sometimes with varying degrees of success:

1- Prevent the coming of menstruation with a hormonal treatment! By taking the pill, the body will be deprived of estrogen. This will prevent the woman from having her period. In fact, the endometriosis lesions on the organs will bleed at the same time as the periods and create microhemorrhages, which will create adhesions and cysts.

2- Artificial menopause which suppresses ovulation and menstruation for a certain period of time.

3- Surgical treatment is an abrasive and complex procedure. Endometriosis surgery must be performed by endometriosis experts.

Tell us about your background

This story is also yours?

Does this disease affect you in any way? Be assured of our full support in your fight against the disease. Do not hesitate to contact us to tell us about your experience.

Speaking up
How is endometriosis diagnosed?

As explained above, endometriosis has as many facets as there are menstruating women. Some symptoms of endometriosis may be striking for you and should prompt you to consult a specialized doctor, a gynecologist or a midwife.

There are several techniques for diagnosing endometriosis. Not all of them are 100% reliable.

1-Pelvic ultrasound, which allows the internal organs to be visualized, particularly the cervix. To do this, an endo-vaginal ultrasound must be performed by introducing a probe into the vagina. This examination is very useful for detecting the presence of ovarian cysts.
2-MRI provides 2 or 3D views. It gives an observation of soft tissues such as internal organs. MRI can detect cysts, lesions or nodules of endometriosis. MRI is used to complement and confirm an ultrasound report.
3-Hysterography or hysterosalpingography is an examination of the uterus and fallopian tubes to look for uterine malformations and adhesions in the fallopian tubes. It is particularly practiced when there are additional examinations in the exploration of fertility.
4 -Endorectal ultrasound is an ultrasound performed with a probe that is introduced into the rectum in order to detect deep lesions that could affect the rectum.
5 - Virtual colonoscopy, uroscanner or air colonoscanner allows a fine exploration of the entire rectum and colon and ureters. It is indicated in the search for very deep endometriosis!
6- Laparoscopy, also called laparoscopy, is a surgical procedure that consists of introducing a small camera via the navel and various instruments. Laparoscopy allows a complete assessment of endometriosis to be made because the surgeon will be able to have a global view of all the lesions. Laparoscopy is most generally indicated in the event of the need for surgery and is no longer really used as a diagnostic tool as it is considered too abrasive.