What is endometriosis?
The fight against endometriosis is a cause close to our hearts. Over the past 3 years, progress has been made, but no cure has yet been found and clinical research into the disease is rare. Marion's visceral desire to fight endometriosis in order to accelerate awareness of the disease and its treatment is part of the genesis and DNA of the Elia brand.
That's why we support associations fighting endometriosis, particularly the Fondation de Recherche et de lutte contre l'Endométriose. Because there are no small contributions, only big commitments, we donate part of our profits and everyone on the team is committed to this fight!
What is endometriosis?
Endometriosis is a chronic gynecological disease that affects an average of 1 in 10 women, or around 176 million people worldwide. This inflammatory condition is caused by the presence of endometrial-like tissue outside the uterus in regulated women. There is evenadenomyosis, a form of the disease in which the endometrium infiltrates the myometrium, creating intense pain.
The location and depth of endometriosis lesions vary from one woman to another. Feelings, pain and impact on quality of life also vary from one person to another. Symptoms are therefore varied and difficult to grasp for medical staff and patients alike, who suffer from painful periods or chronic pain outside periods.
The impact of endometriosis is gynaecological pain, infertility... Unfortunately, diagnosis is often delayed: it can take up to ten years between the discovery of the first symptoms and confirmation of the disease.
The chronicity of endometriosis and menstrual cycles contribute to the growth of endometriosis lesions each month. It's a vicious circle that feeds itself more or less rapidly, depending on the woman. The growth of these endometriosis cells over time leads to the appearance of larger and larger lesions, which then cling to and migrate towards the fallopian tubes, vagina, ovaries, colon, ureters and diaphragm. In some cases, endometriosis can even become lodged in the sacral or sciatic nerves.
THE STORY OF MARION, FOUNDER OF ELIA
A personal story
A long-lasting, silent inflammatory disease that shows signs of life for a while, but never really reveals itself...
Then one day, sometimes after months or even years of pelvic pain, heavy periods , urinary discomfort, disrupted sexual relations and aborted pregnancy plans, you finally find a cause and put a name to what you have:endometriosis. It's a long road, with long diagnosis times and interminable waits for painful tests.
This is the story of Marion, the founder of Elia, but it may also be yours, that of your daughter, your mother, or a loved one.
ELIA GIVES BACK 10% OF ITS PROFITS
The fight against endometriosis, a cause close to our hearts
Women suffering from endometriosis can go through a number of stages (hysteroscopy, laparoscopy, removal of ovaries and fallopian tubes, artificial menopause, continuous pill...). However, no cure has yet been found, and clinical research into the disease is scarce.
Marion's visceral desire to fight endometriosis in order to accelerate awareness of the disease and its treatment is part of the genesis and DNA of the Elia brand.
That's why we support associations fighting endometriosis. 10% of Elia's profits are donated to research projects and support for women facing this disease. In this way, each and every one of your purchases contributes to raising public awareness of endometriosis. Because there are no small contributions, only big commitments.
What are the main symptoms of endometriosis?
The symptoms and pain of endometriosis vary for each woman:
- Very painful periods pains that prevent you from getting on with your day. Lndometriosis is a disease that is totally linked to hormonal activity, and therefore to menstrual cycles. The pain is therefore accentuated when you have your periods and your body produces inflammation! Around 70% of women with endometriosis experience disabling pain in their daily lives. Even outside periods.
- Abundant periods , more than 80 ml of fluid lost - you can do the Higham test
- Pain during and after intercourse! It's not normal to feel pain during intercourse. LEndometriosis are cells that lodge everywhere, and in this particular case, they will come to rest in the vagina or create cysts around the uterus, making certain sexual positions complicated. The vast majority of women who suffer from pain during intercourse have deep-seated pain, but also reflex contractions of the perineum and vagina during penetration.
- Pain during defecation or urination! When endometriosis adhesions settle in the digestive tract, some women experience digestive problems and regularly experience diarrhea or constipation.
- Lower back or lumbar pain
- Chronic, long-lasting fatigue that doesn't go away after resting or taking magnesium or iron.
- Difficulties in achieving a natural pregnancy with endometriosis, usually after at least 12 months of trying for a baby. It is estimated that 30-50% of women with endometriosis suffer from infertility. This is due to ovulation disorders, endometriosis lesions on the reproductive system, reduced ovarian reserve, difficulties in achieving embryonic implantation, and fallopian tube obstruction.
Ls endometriosis benign?
Endometriosis lesions can behave like real tumors, but rest assured, they are benign. The lesions infiltrate and deform the organs, disrupting their normal functioning, which makes the disease very complicated to manage for endometriosis sufferers.
What causes endometriosis?
Lndometriosis is a highly complex disease. It's a Trojan horse that fascinates many researchers and doctors. Various studies explain and agree that endometriosis appears 50% for genetic reasons and 50% for environmental reasons.
Some of the body's mechanisms are also conducive to the development of disease. These mechanisms include :
- Retrograde periods or retrograde menstruation. These are women who do not eliminate their periods properly. Menstrual blood eventually s'implants in the uterine cavity, organs to create endometriosis lesions.
- Heredity - The Haute Autorité de Santé (HAS) and the Collège National des Gynécologues et Obstétriciens Français (CNGOF) explain that the risk of developing endometriosis in first-degree relatives is 5 times higher than in the general population.
- The transformation of peritoneal cells into endometriosis. These are the membranes that support the organs of the abdomen.
- The passage of uterine endometrial cells into the bloodstream at the time of periods causes the endometrium to migrate to other organs. This is also why endometriosis is sometimes associated with cancers or tumors. The mode of migration is essentially the same
- Endocrine disruptors are no strangers to the disease. The WHO defines endocrine disruptors as substances or mixtures that alter the functions of the endocrine system. This system is itself a set of tissues and interactions that communicate with the rest of the organism. Certain persistent organic pollutants, such as polychlorinated biphenyls, organochlorine pesticides and dioxins, have an impact on the endometrium.
How is endometriosis treated?
To date, there is no cure for endometriosis, which is an incurable disease. It is very difficult to diagnose, and takes many different forms. However, various treatments are available to reduce cell proliferation and limit the impact on daily life, sometimes with varying degrees of success:
1- Prevent periods with hormone treatment! By taking the pill, the body is deprived of estrogen. This will prevent the woman from having her periods. In fact, endometriosis lesions on the organs will bleed at the same time as the periods and create microhemorrhages, leading to adhesions and cysts.
2- Artificial menopause, which suppresses ovulation and periods for a certain period of time.
3- Surgical treatment is a complex and abrasive procedure. Endometriosis surgery must be performed by endometriosis experts.
TELL US ABOUT YOUR CAREER
Is this your story too?
Does this disease affect you in any way? You can be sure of our full support in your fight against the disease. Don't hesitate to contact us and tell us about your experience.
How is endometriosis diagnosed?
As explained above, endometriosis has as many facets as there are menstruating women. Some symptoms of endometriosis may be striking for you and should prompt you to consult a specialist doctor, gynaecologist or midwife.
There are several techniques for diagnosing endometriosis. Not all are 100% reliable.
1-Pelvic ultrasound enables visualization of the internal organs, in particular the cervix. An endo-vaginal ultrasound is performed by inserting a probe into the vagina. This examination is very useful for detecting the presence of ovarian cysts.
2-MRI provides 2 or 3D views. It provides a view of soft tissues such as internal organs. MRI can be used to detect endometriosis cysts, lesions or nodules. MRI complements and confirms an ultrasound report.
3-Hysterography or hysterosalpingography is an examination of the uterus and fallopian tubes to look for uterine malformations or adhesions in the fallopian tubes. It is particularly useful when complementary fertility examinations are required.
4 -Endorectal ultrasound is an ultrasound performed using a probe inserted into the rectum to detect deep-seated lesions that could affect the rectum.
5 - Virtual colonoscopy, uroscanner or air colonoscanner enables detailed exploration of the entire rectum, colon and ureters. It is indicated in the search for very deep endometriosis!
6- Laparoscopy, also known as laparoscopy, is a surgical procedure involving the introduction of a small camera via the navel and various instruments. Laparoscopy enables a complete endometriosis assessment to be carried out, as the surgeon is able to gain an overall view of all lesions. Laparoscopy is generally indicated when surgery is required, and is no longer really used as a diagnostic tool, as it is considered too abrasive.
Shall we keep in touch?